Saturday, May 05, 2007

Looks like the girls are working through the whole gender issue. Rachael still calls me "Ms. Mommy." And she calls Deren "Ms. Daddy." Abby, meanwhile, calls Deren "Mommy" all the time. "Daddy" was her favorite word for months on end. Now both me and Deren are "Mommy." Deren has been scolding me for not correcting them more - I'm always too busy laughing and calling for him - "Abby's calling for her Mommy!"

For those of you who may be familiar with Dora the Explorer, Abby has taken to saying "Swiper No Swiping!.. Oh Man!" Even Jacob is saying "Oh Man!" And if you're wanting more week-in-the-life-of-Abby moments, Deren came out of our room chuckling this morning. He asked Abby what she was doing. She said "Nothing!" hah! that'll be the day! This evening Deren came to me again chuckling. He said that Abby took the tiny baby that goes in the dollhouse, put it on the changing pad in the bathroom, got some wipes from the counter, and 'changed' the baby's diaper!

Joshua is on yet another hunger strike. This time he's forsaken his main source of calories, chips, along with the protein. So all he wants to eat is candy and popsicles. Oooooooooookay. I took him to his autism doc on Monday. The dr has seen Joshua since Joshua was just under 2 yrs old. The dr observed Joshua, who was acting rather psychotic from being up since 2:30a.m. He kept saying "we really need to DO something." He prescribed Joshua nizoral for his on-going yeast/gut issues. Unfortunately, Joshua will not take the crushed nizoral for anything. The dr also recommended IV chelation. Joshua has a IV challenge appt this coming Tuesday. The plan is to give him a challenge dose of DMPS and EDTA, then collect his urine for 6 hrs. If a lot of metals show up in the urine, then it may signify that Joshua has a lot of 'trapped' metals in his body that are not being eliminated like they should. Ugh! I hate to make these decisions, knowing full well that Joshua won't have a darn clue what is going on, and that IV chelation holds more of a risk. On the other hand, he's starving himself, he's not sleeping, he's withdrawing more and more. It's not looking good for the Joshua.

The following week Abby goes in to see her neurologist, who will decide if she needs to stay on the phenobarbital.

The boys & Rachael have 2 1/2 weeks of school left. Where has time gone?! Mentally, I feel like I'm still at the beginning of the year. And here I am staring down a summer with the crew! And Mr. Daniel is still VERY attached (emotionally & physically) to the milkmaid. We've tried him on applesauce - he shudders and spits it all out. I tried sweet potatoes yesterday - a bit better than the applesauce, but still not thrilled at all. So, if given his way, he would stay "hooked up" most the day, which is going to be a bit tricky, what with the other 4 running around on their own devices. So kinda worried about that. On the other hand, I'm happy with how things are. With the other kids I so often thought, "I wish they were old enough to do this or that." With Daniel, I'm really enjoying this time and loving on him.

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